Contact Us:
Kids With Heart National
Association for Children's
Heart Disorders, Inc.
P.O Box 12504
Green Bay, Wi 54307-2504
(800)538-5390
(920)498-0058 (Outside US)
michelle@kidswithheart.org
1 in 100 children are affected by congenital heart defects.
Since 1985, Kids With Heart has been providing support, education, and awareness for heart families.
Services Available ....
Parent Matching: Our Parenting Matching services were one of the first available for heart
families. We have been offering this for many years and over the years have gained much
experience in the area of parent matching. Have you been recently introduced to the world
of CHD? Are you looking to talk to other individuals dealing with thesame defects? Maybe
your looking for other heart famlies in your area? Kids With Heart National Association for
Childrens Heart Disorders can help to connect you with others!
Nationwide Database: We have put together a list of support groups for us to refer
families to upon request. Looking for a support group in your area ... we can help you find
it! Looking to start a local support group ... contact Michelle about starting local meetings
in your area through Kids With Heart, NACHD.
Online Support: Kids With Heart offers a wonderful online support group that is free of
charge. This group is monitored to ensure the safest environment we can provide. This is a
great way to reach many people going through similar situations.
Bereavement Services: Sadly, bereavement services are needed in the world of CHD.
Currently, as far as we know, Kids With Heart is the only CHD Support Group that has
any bereavement services available. If you or a loved one has lost someone special due to
a congenital heart defect, please visit our bereavement page today to find online support,
request a bereavement package, or find other helpful suggestions.
Awareness Products: We firmly believe that awareness is one of top priorities in the fight
against congenital heart defects. We have created a wide variety of awareness products
that are not specific to any group or organization. They were created with the sole purpose
of raising awareness of congenital heart defects.
Congenital Heart Defect Education: Kids With Heart has a large library of books
specifically related to congenital heart defects. Over the years, many hospitals and various
groups and organizations have ordered books through Kids With Heart for their parent
libraries and other education purposes. Many of our books are only available through
Kids With Heart National Association for Childrens Heart Disorders.
Research: The bottom line in the area of congenital heart defects is research. To find
a cause, cure, or prevention to congenital heart defects to elimate groups such as ours.
Kids With Heart supports varies research projects, including the American Heart
Associations Zachary Brooks CHD Endowment. Our ultimate goal is to find a cause,
cure, and prevention of congenital heart defects so that groups such as Kids With Heart are
no longer needed
Resources: Along with the assistance of heart parents, professionals, and individuals, we
have compiled a listing of many valuable resources.
Meetings: For many people, face to face meetings bring the most support. Take
advantage of our parent matching services and find other heart families in your area. With
busy schedules, we find that it is difficult to plan a meeting that many families will be able
to attend. By using our parent matching services, you can find families in your area and
plan a time that works best for you.
Toll Free Number: For parents to call for advice, support, or other information.
Kids With Heart NACHD, Inc. Disclaimer:
The intention of this information is to give parents of children with congenital heart disorders a place to find information about specific disorders and other support resources. Kids with Heart National Association for Children's Heart Disorders, Inc. personnel are not doctors or medical personnel. In no way should any information found on this site be a substitute to professional medical care or attention from a qualified practitioner nor should it be inferred as such. ALWAYS check with your child's doctor if you have any questions or concerns about any diagnosis, symptoms, or treatments.
Site maintained and created by Angela Brooks and Michelle Rintamaki for Kids With Heart National Association for Children's Heart Disorders a 501(c)3 charitable organization.