Online Congenital Heart Defect Support :
To support those affect by congenital heart defectsSupport for those who have lost a loved one because of a congenital heart defect.Online Resources and Information :
Published by Cincinnati Children's Hospital Medical Center pediatric heart specialists ~ How the Heart Works great site for both adults and kids!The Heart House (Children's Heart Institute)
~ Simple way to see how blood flows using a house as a diagram~ MedicAlert is much more than just a bracelet or pendant. MedicAlert is the combination of our 24-Hour Emergency Medical Information Services working together with your bracelet or pendant~ Compiles disability-related resources in each state, and creates State Resource Sheets. This handy resource sheet will help you locate organizations and agencies within your state that address disability-related issues.~Birth Defect Research for Children provides parents and expectant parents free fact sheets about the most common categories of birth defects.Web Resources to learn about the Transplant Process
Transplant LivingTo help patients and their families learn more about the transplant process, UNOS' patient education, provides comprehensive information, resources and support for every stage of the transplant experience.
Internet Groups Providing Assistance for more than just Heart Defects
Make a Child Smile (Commonly known as MACS)
~Make A Child Smile is an internet-based, non-profit organization that provides emotional and financial support to critically ill children and their families. Visitors to the site can participate by sending the featured children and their siblings cards, letters, and small gifts via postal mail. ACHD Information and Websites
CHD Specific Websites
CHD Pediatric Hospitals*
*This list of hospital is strickly for informational purposes. Kids With Heart NACHD, Inc does not recommend nor endorse any specific hospital. If you have another pediatric CHD Hospital that you would like added to our list, please contact us.
Fairview Children's Hospital-Minneapolis, MN
Sibley Heart Center at Children's Healthcare of Atlanta
The Heart Institute for Children Oak Lawn, IL
Mott's University of Michigan Children's - Dr. Bove
Congenital Heart Resource Center - Portland, OR
Hall-Garcia Cardiology Associates
Clarian Health - Krannert Institute of Cardiology
TEXAS CHILDREN'S HOSPITAL - Houston,Texas
Arkansas Children's Hospital Pediatric Heart Center
Grief Support and Information
Summer Camps
Camp Del Corazon ~ California
Camp Bon Coeur ~ Louisiana
Camp Meridian ~ New Hampshire
Camp Odayian ~ Minnesota
Medical Transport Information
Air Care Alliance - the only master listing of all known volunteer aviation organizations providing free medical air transport.
33 Holly Drive
Storrs, Connecticut 06268-2226
Phone: 860 429-2972
Fax: 603 806-7937
rol.murrow@ evac.org
AIRLIFELINE - provides air transportation to ambulatory patients in need of financial assistance.
6133 Freeport Blvd.
Sacramento, CA 95822
1-800-446-1231 (M-F 7:30am-4:30pm PST)
(916) 429-2500 50 Fullerton Ct., Suite 200
Sacramento, CA 95825
(916) 641-7800
(916) 641-0600 (Fax)
staff@airlifeline. org (e-mail)
Corporate Angel Network - flies patient with 2 adults to necessary destination on a corporate jet that has empty seats available.
Westchester County Airport
Building One
White Plains, NY 10604
(914) 328-1313 (8:30-4:30 EST M-F)
info@corpangelnetwo rk.org
LIFELINE PILOTS - Need to have a letter from the doctor saying it is okay for the patient to fly. Provides free air transportation on private aircraft for health care and other compelling human needs.
Byerly Aviation Bldg. 3rd Fl.
6100 W. Dirksen Parkway
Peoria, IL 61607
1-800-822-7972
(309) 697-6865
(708) 524-8937
(309) 697-6541 (Fax)
nablake@lifelinepil ots.org
MERCY MEDICAL AIRLIFT - Our mission is to facilitate a charitable means of long distance medical air transport for all medically indigent, low-income and financially vulnerable patients -- thereby ensuring equal access to distant specialized medical treatment or to appropriate facilities and settings for continuing care.
4620 Haygood Rd., Suite 8
Virginia Beach, VA 23455
1-888-675-1405
(747) 318-9175
(757) 318-9107 (Fax)
mercymed@aol. com
(702) 261-0494
Fax: (702) 261-0497
Founded in Green Valley, Nevada, in 1985, Miracle Flights For Kids is a nonprofit organization providing no cost air transportation for children and families to hospitals and specialized health care facilities around the country. There is no charge for any of our services. We will fly as far as needed, and as many times as necessary, to meet the needs of the families we serve.
NATIONAL PATIENT AIR TRANSPORT HELPLINE (NPATH) - provides referrals to charitable air medical transportation.
PO Box 1940
Manassas, VA 20108-0804
1-800-296-1217
(703) 361-1191
(757) 318-9145
(703) 361-1792 (Fax)
npath@aol.com
NAVY MARINE CORPS RELIEF SOCIETY - provides interest-free loans or grants to help with emergency needs such as emergency transportation, funeral expenses, medical/dental bills, food, rent, and utilities, and child care expenses. Also has visiting nurses performing house calls and instruction to mothers and newborns as well as gives out layettes (junior seabags) to new parents. They also have budget counseling which provides training, education, and remedial counseling.
Executive Director, Mrs. Presha Merritt
Quantico, VA 22134
(703) 640-7137
VOLUNTEER PILOTS ASSOCIATION - provides air transport to needy people for medical treatment.
PO Box 95
Hickory, PA 15340
(724) 356-4007 (voice and Fax)
Kids With Heart NACHD, Inc. Disclaimer:
The intention of this information is to give parents of children with congenital heart disorders a place to find information about specific disorders and other support resources. Kids with Heart National Association for Children's Heart Disorders, Inc. personnel are not doctors or medical personnel. In no way should any information found on this site be a substitute to professional medical care or attention from a qualified practitioner nor should it be inferred as such. ALWAYS check with your child's doctor if you have any questions or concerns about any diagnosis, symptoms, or treatments.
Site maintained and created by Angela Brooks and Michelle Rintamaki for Kids With Heart National Association for Children's Heart Disorders a 501(c)3 charitable organization.
